NASDDDS
2008 Annual Conference
Crowne Plaza Hotel Old Town Alexandria
Alexandria, Virginia
November 12-14, 2008

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Constructing the New Paradigm:
Responding to Demographic and Economic Realities

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Meeting Presentations

To view a presentation file, click on the appropriate file name (e.g., MOSELEY.ppt). The presentations are in the format submitted by the each panel and/or session presenter.

= Word Document
= PDF File
= PowerPoint Presentation

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CONFERENCE INTRODUCTION

Constructing the New Paradigm:
Responding to Demographic and Economic Realities

Nancy Thaler
Executive Director
NASDDDS

Ms. Thaler presentation explained how we are witnessing a paradigm shift in state DD service systems. Demographic pressures and economic realities are requiring states to rethink the types of services people receive and where they receive them. State agencies need to understand the implications of these changes and assure that the mission, values, and fundamental goals of the service delivery system are preserved.

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PLENARY ADDRESS

"How WE Have the Life We Want: Our Choices, Our Life"

Jeremy Folk
Self-Advocate
The Pennsylvania Training Partnership
for People with Disabilities and Families, and Mentors for Self Determination

Brenda Folk
Jeremy's mom and Advocate
Associate with Support Development Associates of Annapolis, Maryland

Jeremy and Brenda shared their story as to how they have their own lives while maintaining balance with other family members and supporting each other.

FOLK.pdf (3.2 MB)

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BREAKOUT SESSION I-A: Supporting People and Their Families

Panel Discussion: Who is the Self in Self-Determination?

Mary Lou Bourne
Partner
Support Development Associates.
Hollidaysburg, Pennsylvania

Shelley Dumas, PhD
Consultant with Support Development Associates and
Director of Community Education,
Texas Center for Disability Studies (UCEDD),
University of Texas at Austin

Jeremy Folk
Self-Advocate
The Pennsylvania Training Partnership for People with Disabilities and Families and Mentors for Self Determination

Brenda Folk
Jeremy's mom and Advocate
Associate with Support Development Associates of Annapolis, Maryland

Families Living Together: How do we make it work? As families move through life, relationships between parents and their sons and daughters evolve and change. This session discussed how young adults with disabilities and their parents struggle with this aspect of their lives. How do parents continue to provide support, while also supporting the separate identity of their son or daughter? How does this affect the dynamic of siblings? How can service systems support families who live together while still respecting the person's autonomy? The formal service system has a role to play by learning how to respect the relationship, while also holding conversations and asking the questions that will lead to the type of support adults and families need to make it work for everyone. This session provided person-centered strategies and tools to begin this journey.

BOURNE (PERSON-CENTERED SYSTEM).ppt (1.6 MB)
BOURNE (SUPPORTING FAMILIES).ppt (2.4 MB)
FOLK.pdf (3.2 MB)

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Rebecca Cokley
Project Coordinator
National Consortium on Leadership and Disability/Youth
Washington, D.C.

Transition from youth to adulthood is as difficult for families and parents of people with disabilities as it is for the person experiencing it. This presentation will focus on how to help families feel supported, while encouraging young men and women with disabilities to take steps towards reaching the goals of the ADA; full participation, economic self-sufficiency, equality of opportunity, and, independent living.

COKLEY.ppt (238 (KB)
COKLEY (Self-Determination).ppt (273 KB)

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BREAKOUT SESSION I-B: Supporting People and Their Families

The Next Generation of Family Support Services

John Agosta, PhD
Vice President
Human Services Research Institute
Portland, Oregon

Demand is steadily increasing for developmental disability services. Meanwhile, states are having trouble finding the funding for additional services, and stuck with outdated service arrays that people increasingly don't want. In response, states are increasingly looking for ways to provide adults "in home" supports, very often involving supports offered within their family home. Still, going forward, the public sector cannot easily address the needs of all its citizens with disabilities. What can be done? This session offered a discussion on these circumstances and describes a promising response that blends together three resources: (a) services offered by public agencies, (b) supports that people with disabilities and others may offer to one another, and (c) supports offered by community serving organizations. The approach shows great potential for developing a sustainable, effective, and efficient response to disability.

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BREAKOUT SESSION I-C: Shared Living Options

Pennsylvania's Lifesharing Community - Experiences and Perspectives

Dana Olsen
Director of Quality Improvement Initiatives
Pennsylvania Office of Developmental Programs (ODP)

Mark Boorse
Consultant/Trainer
ACCESS Services
Washington, Pennsylvania

Carrol Reckard
Lifesharing Director
Ken Crest Services Chair,
Lifesharing Subcommittee of the ODP Planning Advisory Council

Nancy Norwood and Elizabeth Wertner
Lifesharing Family

Representatives from Pennsylvania described what a lifesharing experience is for people, how a culture has evolved in their state to keep lifesharing true to its intent, and how Pennsylvania carries out its responsibilities to assure health and safety without intruding into the lives of people.

BOORSE.ppt (2.2 MB)
OLSEN.ppt (53 KB)

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PLENARY SESSION

Centers for Medicare and Medicaid Services (CMS):
Medicaid Home and Community-Based Services Waivers - New Directions?

Suzanne (Suzie) Bosstick
Director
Division of Community and Institutional Services
Centers for Medicare and Medicaid Services
Baltimore, Maryland

Mary Sowers
Division of Community and Institutional Services
Technical Director, HCBS Waivers
Centers for Medicare and Medicaid Services
Baltimore, Maryland

Ms. Bosstick and Ms. Sowers discussed the economic situations currently facing states and the federal government and explore models that states may use to provide managed Home and Community-Based Services (HCBS) waivers. They provided an overview of the options available to states to organize and manage Medicaid long-term care services including the various legal authorities for managed care and state requirements. Ms. Bosstick and Ms. Sowers also identified other strategies states have employed to keep costs down in HCBS waivers.

BOSSTICK&SOWERS.ppt (245 KB)

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BREAKOUT SESSION II-A: People and Families Supporting Each Other

Human Service Co-ops, a Self-Directed Model That Brings People Together

Gale Bohling
President
Federated Human Service Cooperative
Phoenix Arizona

Human Service Co-ops provide a platform that brings people together to self-direct their services in partnership with their community, professionals, and funding entities. Developed through a CMS New Freedom Grant, Arizona now has three local Human Service Co-ops (HSC®) owned and controlled by individuals and families who coordinate services through their local co-op. Through the Federated HSC, this model is also being introduced in California, Tennessee, Michigan, and Illinois.

BOHLING - A Member Owner Perspective.pdf (94 KB)
BOHLING - Common Questions.pdf (35 KB)

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Cooperative Neighborhood and Community Approaches to Long-Term Supports

Mike Cheek
Director
NCB Capital Impact
Arlington, Virginia

There are a number of cooperative approaches to neighborhood and community long-term supports organization and delivery. In these arrangements, community residents of a neighborhood or a town develop and oversee an organization that coordinates and delivers in-home services, helps with caring for a home, and fosters community connections.

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BREAKOUT SESSION II-B: Innovations in Managed Care (repeated III-B)

Arizona's Unique Service System

Barbara Brent
Assistant Director, Division of Developmental Disabilities
Arizona Department of Economic Security

Arizona's unique system of services uses a Medicaid 1115 (c) waiver to provide both acute and long-term care services and supports to people with developmental disabilities and their families throughout the state. Almost 90% of individuals supported in Arizona live with their families or in homes of their own. Learn about the advantages of this unique system's design as well as the important considerations in making sure that each individual in "seen" through person-centered "eyes."

BRENT.ppt (2.1 MB)

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Michigan's Transformation Process for Excellent Consumer Outcomes

Michael J. Head
Interim Deputy Director, Mental Health and Substance Abuse Administration
Michigan Department of Community Health

Judy Webb
Director, Division of Quality Management and Planning
Michigan Department of Community Health

Person-centered planning, community integration, and inclusion, meaningful participation in productive activity, and opportunities for consumer self-determination, and other principles underlie Michigan's Medicaid Specialty Services Program. In order to enhance system response to these and related principles, the Mental Health and Substance Abuse Administration released in August a Concept Paper, and, in October, a "consultation draft" of an "Application for Renewal and Recommitment" (ARR). This session presented an overview of the ARR, high-lighting the elements of performance steps in the planning process that will result in state-level performance-based contracts expected to be individual negotiated in the 18 county-based Prepaid Inpatient Health Plans for the 2010 fiscal year.

HEAD&WEBB.ppt (134 KB)

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BREAKOUT SESSION II-C: Innovations in Managed Care (repeated III-C)

Vermont's Experiments in Managed Care

Theresa Wood
Executive Director, APS Healthcare, Inc.
Williston, Vermont
and NASDDDS Alumnus

Ms. Wood shared Vermont's experiences converting from a 1915(c) waiver to becoming part of the state's Global Commitment to Health 1115(b) waiver. Highlights of the presentation included experiences with the first-in-the-nation state-run managed care organization. Do the gains made outweigh the complexities?

WOOD.ppt (579 KB)

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Expanding Managed Care in Wisconsin

Beth Wroblewski
Director
Bureau of Long Term Support
Wisconsin Department of Health and Family Services

Kathleen Ludtke
Policy Initiatives Advisor
Bureau of Long Term Support
Wisconsin Department of Health and Family Services

Beth and Kathleen highlighted a number of Wisconsin's managed care programs including Family Care, PACE, and Partnership and efforts to expand these programs statewide by 2011 to eliminate waiting lists for all adult populations no later than 2013. This presentation also included a description of Wisconsin's efforts to create a comparable benefit for children with long-term support needs and elimination of children's waiting lists by 2016.

LUEDTKE.ppt (2.1 MB)

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BREAKOUT SESSION III-A: Supporting People and Their Families in Canada

Brian Salisbury
Director, Strategic Planning
Community Living British Columbia

Community Living British Columbia (CLBC) was created as a result of a community development process to give individuals and families much greater say in the design and operation of the supports and services they require to lead good lives in welcoming communities. This session provided an overview of CLBC's policy and practice framework that is committed to honoring "personal choice" and stimulating new ways to respond to "disability-related needs." Issues covered included unbundling, individualized funding, home sharing, contract monitoring, and innovation investments.

SALISBURY.ppt (1.2 MB)

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REACTOR PANEL: Views from the States

Peter A. Bisbecos
Director
Disability and Rehabilitative Services
Indiana Family and Social Services Administration

Sharon Jacksi
Director
Division for Developmental Disabilities
Colorado DHS/OADRS

Bernard (Bernie) Simons
Director
Mental Retardation and Developmental Disabilities
Missouri Department of Mental Health

State developmental disability services directors reflected on and discussed themes and issues brought up during the conference.

BISBECOS Reactor Panel.ppt (338 KB)

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