To go directly to specific publication category, click on the appropriate link below:
NEW RELEASES
STUDIES &
REPORTS
NASDDDS TITLES AVAILABLE
FOR PURCHASE
Assessment and Analysis of the Service Needs of Washington, D.C. Residents with Intellectual and Developmental Disabilities for Washington, D.C. Department on Disability Services and Developmental Disabilities Council by the National Association of State Directors of Developmental Disabilities Services; Final Report, June 1, 2011; Charles Moseley, Ed.D. and K. Charlie Lakin, Ph.D.
Managed
Care and People with Developmental Disabilities: A Guidebook
Gary Smith and John Ashbaugh (1995). The 'red book' is now available at
no charge. (This is a LARGE document (75MB) and will take a bit of time
for you to download...)
Best
Practice, Expected Practice, and the Challenge of Scale
Michael W. Smull, Mary Lou Bourne, and Helen Sanderson (April 2010)
Most state developmental disabilities (DD)
systems have attempted to nurture the development and application of innovative
practices through pilot projects and demonstrations that have defined desired
best practice outcomes. While progress has been made, the challenge to move
typical practice toward best practice, to take best practice to scale remains.
To do this, state leaders need to operationally define expected practice
and create positive pressure for change through a set of actions that move
typical practice toward best practice. This paper explores our understanding
of the meaning of best practice, reviews the lessons learned from thought
leaders who have taken change to scale and offers a new way of thinking
about expected practice.
Policy
Insights Bulletins Volume 1, Issues 1-3
by Bob Gettings former NASDDDS Executive Director (2009)
Workers
First
Employment First policies represent a significant step in states’
efforts to improve integrated employment outcomes for persons with developmental
disabilities receiving publicly financed support. This paper by Chas Moseley,
NASDDDS Associate Executive Director, outlines some of the steps taken by
NASDDDS member state agencies to implement comprehensive policies that prioritize
employment in integrated settings as the preferred day service alternative.
(2009)
Maintaining
a Focus on Employment in Tough Economic Times
By David Hoff, Institute for Community Inclusion, University of Massachusetts
Boston and Molly Holsapple, Oregon Office of DD Services with Rie Kennedy-Lizotte
and Charles Moseley, EdD, NASDDDS. (March 2009)
How
to Manage in an Economic Downturn
Nancy Thaler, Chas Moseley, Robin Cooper, and Kara LeBeau. The current economic
downturn places unprecedented pressure on NASDDDS member state agency directors
to manage shrinking resources and implement cost-cutting measures in ways
that have not been experienced in recent times. Although the nation as a whole
has undergone three “official” economic recessions during the
past thirty years, individual states and regions have had to respond to several
periods of economic stagnation or decline that resulted in budget and service
cutbacks. In each case, state developmental disabilities agency administrators
have acted to minimize the impact of the financial shortfalls on the people
with developmental disabilities and families receiving publicly financed supports.
(December 2008)
State
Strategies for Determining Eligibility and Level of Care for ICF/MR and Waiver
Program Participants
by Ric Zaharia and Charles Moseley, presents the results of a survey of state
developmental disabilities agency officials regarding the policies, procedures
employed by their states to determine eligibility and the annual level of
care for individuals receiving services furnished through Medicaid waiver
and Intermediate Care Facility programs. (July 2008).
Money
Follows the Person: Population, Functional, and Quality Indicators for People
with Developmental Disabilities
by Nancy Kirchner and Charles Moseley, was completed last Fall under a contract
with CMS to gather information on key population data elements currently kept
by the states on individuals receiving developmental disabilities services.
(September 2007).
To view a document, click on
the appropriate PDF (
)
icon.
| Date | Title | Publisher |
Document
|
| December 2007 |
Addressing Potential Conflicts of Interest Arising from the Multiple Roles of Colorado's Community Centered Boards | Colorado DHS/DDD |
(482 KB) |
| December 2007 |
University of Southern Maine Conflict of Interest Study Summary | Colorado DHS/DDD |
(765 KB) |
| October 2007 |
Collaboration: UCEDDs, LENDs, and State MR/DD Agencies | AUCD |
(267 KB) |
| October 2007 |
Adult Services in the AUCD Network | AUCD |
(75 KB) |
| October 2007 |
Autism Services in the AUCD Network | AUCD |
(84 KB) |
| January 2011 |
Instrument for Assessing State DD Agency Support for Self-Advocacy Activities Version 3.5 | NASDDDS |
(657 KB) |
| April 2009 |
Becoming a Person Centered System - A Brief Overview (Smull, Bourne, and Sanderson) | NASDDDS |
(129 KB) |
| February 2006 |
THE GUIDE: NASDDDS Handbook on Inclusive Meetings and Presentations |
NASDDDS |
(484 KB) |
| November 2004 |
GETTING
A LIFE: Findings & Recommendations from the NASDDDS Invitational Symposium |
NASDDDS |
(211 KB) |
| October 2004 |
NASDDDS TECHNICAL REPORT: |
NASDDDS |
(465 KB) |
| July 2004 |
NASDDDS TECHNICAL REPORT: Support Brokerage Issues in Self-Directed Services |
NASDDDS |
(315KB) |
| April 2004 |
"Proper and Efficient:" Claiming Federal Financial Participation for National Core Indicator Activities |
NASDDDS |
(589 KB) |
| March 2004 |
Picking up the Pieces of Our own Mistakes | NASDDDS |
(293 KB) |
| October 2003 |
Individual Budgeting Strategies: |
NASDDDS |
(176 KB) |
| November 2002 |
Person-Centered Supports -- |
NASDDDS |
(97 KB) |
| August 2009 |
Using Individual Budget Allocations to Support People with Intellectual and Developmental Disabilities | HSRI |
(191 KB) |
| June 2009 |
Developing Reimbursement Levels Using the Supports Intensity Scale (SIS) in Louisiana | HSRI |
(491 KB) |
| April 2009 |
Developing Individual Budgets and Reimbursement Levels Using the Supports Intensity Scale | HSRI |
(969 KB) |
| April 2009 |
Ten Issues for States to Consider in Implementing Individual or Level-Based Budget Allocations | HSRI |
(465 KB) |
| January 2008 |
Discussion of Key Resource Allocation Policy Issues in Louisiana | HSRI |
(137 KB) |
| June 2004 |
Never Give Up: Assets Inc. Commitment to Community Life for People Seen as "Difficult to Serve" | Assets Inc. |
(334 KB) |
| October 2000 |
Wingspread Conference Proceedings Measure for Measure: Person-Centered Quality Assurance |
|
|
NASDDDS TITLES AVAILABLE FOR PURCHASE
ORDER FORM w/complete list of publications.
*Requires Adobe Acrobat Reader.
Click the button below to download a free copy of Acrobat
Reader.
Forging
a Federal State Partnership, NASDDDS and AAIDD release new publication.
This ground-breaking study of the revolutionary changes in public policy toward
persons with intellectual and developmental disabilities over the past fifty
years is written by Bob Gettings, former Executive Director of NASDDDS, an
active participant in the events. (Price $35/NASDDDS Members Only; $50/NonMembers)
Shared
Living Guide, Robin Cooper, Kara LeBeau, and Nancy Thaler, NASDDDS,
May 2011. This guide is about creating the opportunity for people with developmental
disabilities to have a home and people to share everyday life with. Building
on the experiences of states, the guide explains the service system components
necessary to develop and sustain shared living. (Price $20)
Caring Families… Families Giving Care: Using Medicaid to Pay Relatives
Providing Support to Family Members with Disabilities, Robin E. Cooper,
NASDDDS, June 2010. This study of the practice of paying family members to
provide support in state developmental disabilities (DD) systems provides
an over view of federal policy on paying relatives, includes the results of
a national survey of state DD agency policies and practices, summarizes and
analyzes key issues and offers guidance on quality assurance practices. (Price
$10)
Medicaid
and Case Management for People with Developmental Disabilities: Options, Practices,
and Issues (Revised), Robin E. Cooper, NASDDDS, May 2006. In 1998, NASDDDS
published a monograph titled, Medicaid and Case Management for Persons
with Developmental Disabilities authored by Gary Smith and Robin Cooper.
Since that time, Medicaid case management policy and practice has continued
to evolve with the publication of the new HCBS waiver template and recent
changes to case management regulations in the 2005 Deficit Reduction Act.
We have reedited and updated the 1998 publication to reflect the most current
federal regulatory changes and the new issues affecting states in the delivery
of Medicaid financed case management services to individuals with developmental
disabilities. The publication discusses the implications of new policies and
provides reference materials from federal regulations and publications. (Price
$35)
Having
It Your Way: Understanding State Individual Budgeting Strategies.
In response to the growing demand for self-directed services, state developmental
disabilities agencies have begun to use individual budgets as a cornerstone
of their efforts to help persons with disabilities to gain control over their
lives. While interest in this subject is strong, until now very little comparative,
cross-jurisdictional information has been available regarding the individual
budgeting methods used by the states.
To address this information gap, NASDDDS is pleased to announce the availability of the latest publication in its "Special Studies Initiative" series. Entitled Having It Your Way: Understanding State Individual Budgeting Strategies, this report summarizes the findings and conclusions of an 18-month study of individualized funding methodologies currently being employed by state developmental disabilities service systems.
This groundbreaking analysis summarizes the findings of nationwide survey conducted by NASDDDS in mid-2002. It also contains an in-depth analysis and comparison of individual budgeting practices in nine, selected states. (Price $30)
A
Supplement to Closing the Gap: Addressing the Needs of People with Developmental
Disabilities Waiting for Supports, Gary A. Smith, NASDDDS, "A Special
Studies Initiative" Report, November/December 1999. This publication refines,
updates, and expands the methods of forecasting future demand for DD services
that were discussed in the original report; provides more in-depth information
on the waiting list management policies of selected states; Summarizes noteworthy
developments over the past eight months in waiting list litigation across
the nation; and encapsulates the key findings of several recent reports dealing
with state DD waiting lists. With Appendices (Price $10)
Closing
the Gap: Addressing the Needs of People with Developmental Disabilities Waiting
for Supports, Gary A. Smith, NASDDDS, "A Special Studies Initiative" Report,
May 1999. This groundbreaking report: (a) summarizes current knowledge concerning
the dimensions of the waiting list gap, including the reasons behind the interstate
variations in access to services as well as the complex factors driving present
and future service demand patterns; (b) describes the various state-level
initiatives that are underway across the country to close the service gap,
plus the strategies that are being used and the linkages that are being drawn
to broader system reconfiguration efforts; (c) analyzes the various state
approaches to establishing and maintaining waiting lists, including how states
use related data for strategic planning purposes; and (d) pointing out the
effects of federal Medicaid policies on the states' capacity to meet demand
for home and community-based supports. The report also explores the implications
of pending litigation (including Doe v. Chiles in Florida, L.C.
v. Olmstead in Georgia and similar suits in five other states) on
future state efforts to close the waiting list gap. (Price $25)
Medicaid
and Systems Change: Finding the Fit, Robert M. Gettings and Gary A. Smith,
NASDDDS, February 1998. This incisive, groundbreaking report explores the
various policy options available to the states as they redesign their MR/DD
service delivery systems in ways that promote flexible, community-centered
approaches to supporting people with developmental disabilities and making
more effective use of public dollars. (Price $25)
Managing
Our Own Supports: A Primer on Participant-Driven Managed Supports: Applying
Managed Care Strategies in Participant-Driven Systems for Long-Term Supports
for People with Developmental Disabilities, John M. Agosta and Madeleine
Kimmich, NASDDDS and the Human Services Research Institute (through the joint
Center for Managed Long-Term Supports for People with Disabilities), March
1997. This publication explains how managed care principles can be used to
further the emerging vision of full community participation and self-determination
for people with developmental disabilities. (Price $25)
Supporting
People with Severe Reputations in the Community,
Michael Smull and Susan Burke Harrison, NASMRPD, September 1992. Complete
with an action plan, this guidebook is designed to help develop specific strategies
for dealing with individuals who present major behavioral challenges. (Price
$10)
To Order A Publication: Print a copy of the PDF Order Form and mail your check payable to NASDDDS, PO Box 822738, Philadelphia, PA 19182-2738 OR fax this form to 703·684·1395 and an invoice will be emailed to you. (Shipping and postage are not included.) Orders we be mailed using USPS Priority Flat Rate Envelope ($4.95) for up to three/four publications or USPS Priority Flat Rate Box ($10.35) for larger shipments. Applicable postage costs will be added to your order total. Express shipping is available via FedEx, USPS, or UPS using the recipient's account number or will be invoiced at actual cost.
If you are unable to access the PDF file, you may request an order form by call the NASDDDS office at 703·683·4202.