2014 Directors Forum & Mid-Year Conference

2014 Directors Forum & Mid-Year Conference

Supporting People with Challenging Behaviors:
Making Community Work for Individuals with Co-Occurring I/DD and Mental Illness

June 4 – 6, 2014
Royal Sonesta Hotel
300 Bourbon Street, New Orleans, Louisiana

Supporting People with Challenging Behaviors: Making Community Work for Individuals with Co-Occurring I/DD and Mental Illness

Conference Program

(1.6 MB PDF Document)

Conference Theme

States' efforts to support individuals with the most complex behavior and mental health support needs require knowledge about sound behavioral health treatment options, the application of effective support approaches that promote quality lives and safe environments, and collaboration with other service systems.

People with co-occurring conditions are at more at risk of unnecessary psychiatric hospitalization or institutionalization, pharmacological restraint, physical abuse and even arrest and incarceration. They have often experienced trauma in their lives, many as victims of abuse.

Collaboration across intellectual/development disabilities (I/DD) and mental health systems, each with limited resources, takes intentionality and planning. Terms like 'mental' and 'behavioral' are grounded in clinical models of research, diagnosis and treatment, while positive behavior support approaches, emotional health, and person centered planning have been more embedded in the I/DD framework. Holistic interventions and practices create the conditions to support people to have quality lives in the community.

The mid-year conference will focus on supports and services for people with co-occurring I/DD and mental health support needs, with practical solutions and examples of community living, treatment, and support.

The conference will provide opportunities to:

  • Hear from state leaders engaged in systematic capacity building at the state and local levels through cross systems collaboration and innovations
  • Learn from state leaders, providers, clinicians, and positive behavior support professionals, about serving people involved in the criminal justice system and/or those labeled as sex offenders
  • Gain insight into the frequency, types, and impacts of abuse and neglect on people with I/DD, along with implications for community services
  • Learn about trauma informed care and the biological components of behavior/psychosocial/developmental supports
  • Hear about practical solutions from states on comprehensive systems initiatives including policies, practices, training, crisis intervention, prevention, and capacity building

Featured Speakers

Julie Gentile, M.D.
Associate Professor of Psychiatry
Department of Psychiatry, Wright State University School of Medicine
Dayton, Ohio

Julie Gentile, M.D.Julie Gentile is the project director and primary investigator for Ohio's Coordinating Center of Excellence in Mental Illness/Intellectual Disability and division director of intellectual disability psychiatry at Wright State. Julie will address the biological factors in behavior, social and mental health supports; discuss the importance of trauma informed care, and highlight promising practices in rural and urban communities.

Nora Baladerian, Ph.D.
Director
National Disability and Abuse Project
Los Angeles, California

Nora BaladeriNora Baladerian, Ph.D.an, Ph.D., is a licensed psychologist in Los Angeles, California, practicing both clinical and forensic psychology. She serves as the Director of the National Disability and Abuse Project and specializes in working with individuals with developmental disabilities. Nora will present on the vulnerability of individuals with I/DD and mental illness to abuse and neglect, face and focused activities to decrease this vulnerability. She will also discuss the legal and social issues surrounding "unwitting sex offenders" that occur when individuals with I/DD have never been taught acceptable social conduct.

2014 Robert M. Gettings (RMG) Compass Award Recipient

Charlie Lakin, Ph.D.
Director
National Institute on Disability and Rehabilitation Research (NIDRR),
Office of Special Education and Rehabilitative Services
U.S. Department of Education

Charlie Lakin, Ph.D.With more than 40 years of experience as a teacher, researcher, consultant, and advocate in services for people with intellectual/development disabilities and the leader of the Rehabilitation Research and Training Center on Community Integration for more than 20 years, Charlie will be honored with the NASDDDS Robert M. Gettings (RMG) Compass award.

The RMG Compass Award recognizes the achievements of individuals who, while working in the private sector, have made significant contributions to the development of publicly funded state service systems for people with intellectual/development disabilities through research, the design of new service models, training, technical assistance, and consultation.

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If you have any questions regarding program content, please email Barbara Brent or call (703) 896-0043. For registration or exhibit questions, email Megan Rose or call (703) 683-4202.

Schedule:

Directors Forum
Wednesday, June 4
(8:00 AM - 4:00 PM)

Annual Conference
Thursday, June 5
(8:30 AM - 5:00 PM)

Annual Conference
Friday, June 6
(8:30 AM - 1:00 PM)

Conference Program (NEW)
(PDF Document)

Presentations

Thursday, June 5, 2014

KEYNOTE

The Universal Precaution of Trauma-Informed Care: Making Sure Each Individual Feels Safe and In Control

Julie Gentile, M.D., Professor of Psychiatry, Department of Psychiatry
Wright State University School of Medicine
Dayton, Ohio

New Orleans 06-14.pdf (860 KB)

Julie Gentile is the project director and primary investigator for Ohio's Coordinating Center of Excellence in Mental Illness/Intellectual Disability and Division Director of Intellectual Disability Psychiatry at Wright State. An expert, both in clinical skills and systems change, Julie addressed the biological factors in behavioral, social, and mental health supports and discuss the importance of trauma informed care. Julie also highlighted promising practices in systems collaboration for both rural and urban communities.

PLENARY SESSION

From Dine' to Santa Fe — Teamwork in New Mexico

PANELISTS
Jason Buckles, Clinical Director
Office of Behavioral Services
New Mexico Developmental Disabilities Supports Division

Cheryl L. Frazine, Director
Office of Behavioral Supports
New Mexico Developmental Disabilities Supports Division

Chris Heimerl, Consultant
Office of Behavioral Supports
New Mexico Developmental Disabilities Supports Division

Jennifer Thorne-Lehman, Deputy Director
Office of Behavioral Supports
New Mexico Developmental Disabilities Supports Division

2014 05 14 From Dine to Santa Fe.pdf (1065 KB)

The New Mexico Developmental Disabilities Supports Division, with the Positive Behavior Support and Clinical Services Team, presented its comprehensive, statewide system of services for individuals with co-occurring conditions. This unique system addresses positive behavior support, clinical services, building bridges across systems, increasing provider, family, and local capacity, and ongoing consultation for those with the most severe reputations (individuals involved in the criminal justice systems or are labeled sex offenders). As stated in the synopsis of one New Mexico pilot analysis, New Mexico, "identified ways to foster authentic collaboration with lasting effects."

PLENARY PANEL

Team Ohio — Positive Culture Change, Collaboration, and How to Move From Intention to Action in Improving the Lives for Those with Dual Diagnoses and for Those that Support Them

PANELISTS
Pam Berry, Senior Policy Staff
Ohio Department of Developmental Disabilities

Julie Gentile, M.D., Professor of Psychiatry
Department of Psychiatry, Wright State University School of Medicine, Ohio

Willie Jones, Positive Culture Initiative Coordinator
Ohio Association of County Boards of Developmental Disabilities

NASDDDS - Ohio.pdf (11,259 KB)

Ohio's John Martin, Pam Berry, Dr. Julie Gentile, and Willie Jones shared initiatives launched across the state designed to make life better for people with dual diagnoses of mental illness and a developmental disability. Through the unique combination of the Positive Culture Initiative, training and support through Trauma Informed Care, and investment in The Good Life Initiatives, Ohio has made a commitment to educate professionals and future professionals, support staff working across agencies, listen to people with I/DD and their families, and assist local communities to build their knowledge and resources — all to increase the life quality of people with co-occurring disorders.

PLENARY PANEL

Resilience and Growth in the Bayou

PANELISTS
Julie Foster, CCC-SLP, Program Manager for Resource Centers & CEA Facilities
Louisiana Office for Citizens with Developmental Disabilities

Amy Greer, Ph.D., Associate Clinical Director
Louisiana Office for Citizens with Developmental Disabilities

Brandi Kelly, Ph.D., Clinical Director
Louisiana Office for Citizens with Developmental Disabilities

Resilience and Growth in the Bayou NASDDDS 6 2014 conf.pdf (280 KB)

Louisiana presented the current developmental disabilities service systems, including behavioral health supports provided to individuals and family members. Community Support Teams provide supports and services to people with I/DD who need intensive treatment intervention to remain in their communities, with assessment, psychiatric services, family support and education, and other supports and services. This is but one of the projects, along with the strategic plans for Louisiana expansion and change for citizens with co-occurring disorders. Attendees learned from a state with unique geography, rural and urban communities, and the recent history of rebuilding community.
 

PLENARY PANEL

Positive Behavior Support — How We Define It and Implications for State Policy and Practice

PANELISTS
Rachel Freeman, Ph.D., Project Director, Associate Research Professor
Kansas Mental Health Positive Behavior Support Project and Kansas Institute for Positive Behavior Support, Life Span Institute at the University of Kansas

David Rotholz, Ph.D., BCBA-D
Executive Director, Associate Professor of Clinical Pediatrics
Center for Disability Resources (UCEDD),
University of South Carolina School of Medicine

NASDDDSMYCPositiveBehaviorSupports.pdf (3309 KB)

David Rotholz, Ph.D. and Rachel Freeman, Ph.D., experts in Positive Behavior Support from both university perspectives and community implementation, presented an overview of a recent study on the wide variance in how state I/DD agencies define positive behavior support, and how these differences give participants a springboard for reflection, consensus and I/DD agency systems change. In addition, David and Rachel discussed how state I/DD workgroup members are engaged in consensus building to develop a practical, value-based definition.

Friday, June 6, 2014

KEYNOTE

Abuse and Disability: Slowing the Traffic at This Intersection

Nora Baladerian, Ph.D., Director
National Policy and Abuse Project
California

A NASDDDS-REV2.pdf (1802 KB)

Dr. Baladerian, a licensed psychologist, practices clinical and forensic psychology. She serves as the Director of the National Disability and Abuse Project, specializing in working with individuals with developmental disabilities. Nora presented on the vulnerability of individuals with I/DD and mental illness to abuse and neglect, and identify focused actions to decrease this vulnerability. Dr. Baladerian presented information on the trauma experienced by people with disabilities. Finally, discussed the legal and social issues surrounding "unwitting sex offenders" that can occur when individuals with I/DD have never been taught acceptable social conduct. 
   

PLENARY PANEL

State Agencies and Providers Working Together to Support Quality, Safe Lives in the Community

PANELISTS
Jeff Cross, President
AWS/Benchmark Human Services

Bruce Davis, Ph.D., Director of Behavioral and Psychological Services
Tennessee Department of Intellectual and Developmental Disabilities

Nicolle Norvell, Director
Indiana Division of Disabilities and Rehabilitative Services

NASDDDS 2014 Mid-Year Conference (BRUCE, NICOLE, JEFF CROSS).pdf (1462 KB)

State agency/provider partnerships are essential for creating and sustaining successful in-home or small home settings that create good lives for people with co-occurring conditions. Nicole Norvell, Indiana Director of Disability and  Rehabilitative Services; Bruce Davis, Tennessee Director of Behavioral and Psychological Services, Department of I/DD, and Jeff Cross, President, AWS/Benchmark Human Services have forged such a partnership in two states. This session featured the state agency and provider partnership that has resulted in a proven track record. Panelists discussed the planning, development, risk prevention, and ongoing communication and commitment needed to keep people safe, have meaningful lives, and maintain strong systems accountability.

PLENARY PANEL

Learning, Listening, and Teaching — Building Capacity with System Approaches and Heart

PANELISTS
Nora Baladerian, Ph.D., Director
National Policy and Abuse Project, California

Jodi Fenner, Director
Nebraska Division of Developmental Disabilities

Tricia Mason, Deputy Director
Nebraska Division of Developmental Disabilities

Beth Morrison, Director
West Virginia Division of Intellectual & Developmental Disabilities

NASDDDS 2014 Nebrasks Behavioral Supports.pdf (473 KB)

NASDDDS_060614_WV.pdf (595 KB)

As state leaders approach the on-going need to continue improving systems, approaches, and capacity to support individuals with co-occurring conditions in community life, it has become clear that addressing barriers and strengths through multiple strategies, though challenging, has become a necessity. Beth Morrison, Director, West Virginia Division of Intellectual & Developmental Disabilities, shared her state's collaboration with I/DD, mental health and Marshall University to develop a cadre of cross-trained professionals.

Nebraska's Director, Jodi Fenner, and Tricia Mason, Deputy Director, shared their state's multi-pronged approach for behavior support that increases community capacity, integrates the work of the state DD agency and partner agencies, supports people in natural environments, and reduces the need for institutionalization or reinstitutionalization.

Dr. Nora Baladerian joined the panel to share her expertise in support of these efforts, healing trauma and what works for persons with disabilities.