Considerations for Building Federal Data Capacity for Patient-Centered Outcomes Research Related to I/DD

NASDDDS is pleased to announce that the U.S. Department of Health and Human Services Office of the Assistant Secretary for Planning and Evaluation’s (APSE) report, Considerations for Building Federal Data Capacity for Patient-Centered Outcomes Research Related to Intellectual and Developmental Disabilities is now available.  NASDDDS was a proud contributor to this work 

This report describes the current state of Patient-Centered Outcomes Research (PCOR) data infrastructure resources related to Intellectual and Developmental Disabilities (ID/DD), highlights data issues in the ID/DD research landscape that require more research, and identifies opportunities to enhance data infrastructure to improve PCOR for ID/DD.

Considerations for Building Federal Data Capacity for Patient-Centered Outcomes Research Related to Intellectual and Developmental Disabilities File LINK