State intellectual and developmental disabilities services systems support individuals with I/DD throughout their life span. Families play a significant role across the life span — most individuals with I/DD live with their families. Therefore, states need to partner with families and support them in the different roles they play in the lives of their family members.
"The goal of supporting families is to support families, with all their complexity and diversity, in ways that maximizes their capacity, strengths and unique abilities so they can best support, nurture, love and facilitate the achievement of self-determination, interdependence, productivity, integration and inclusion in all facets of community life for their family members."
working definition from
ADD National Agenda on Family Support Conference
Supporting Families throughout the Lifespan
An overview of why supporting families is important to public policy developers and implementers.
Building a National Agenda for Supporting Families with a Member with Intellectual and Developmental Disabilities
From the 2011 Wingsrpead Family Support Conference Summit. "It is our intent in sharing this report to promote a national discussion about…
Charting the Life Course
Charting the Life Course was developed to help individuals with disabilities or special healthcare needs and families at any age or stage…
Supporting Families Community of Practice Expansion Application
This application should be filled out by states that are interested in participating in the Supporting Families Community of Practice…
A Research Agenda for Respite Care Report
This report helps the reader understand the existing research base about respite, and to make recommendations for how to structure and…
The Supporting Families Project, funded under a five-year grant from the Administration on Intellectual and Developmental Disabilities… More3 Resource(s)
Webinar recordings from the Supporting Families Community of Practice.5 Resource(s)