You will find information here about impacts resulting from the recent change in administration and how resulting policy shifts affect and will affect state IDD systems. Policy experts and colleagues will share information on congressional actions, federal rule changes, executive actions, administrative updates, state challenges, and other relevant topics in this environment. NASDDDS is working diligently to ensure our members are kept as up to date as possible in a rapidly evolving environment. All resources should be vetted to ensure you have the most recent version. Please reach out to NASDDDS at cmcgraw@nasddds.org with any questions or to receive clarification or confirmation on any posted items.
General Resources:
- Key Terms in IDD Support Systems for State and National Leaders Brief
- HCBS Infographic
- HCBS Stories
- Medicaid Primer Infographic
- Medicaid Primer One Pager
- Budget Reconciliation Overview Infographic
- NAMD Resource: Why Did They Do It That Way? Medicaid Financing (posted 4/30/2025)
Federal Policy Resources:
- 2026 Administration Position on Olmstead
- Texas v. Kennedy: Final Judgment
- NASDDDS and ADvancing States Joint Comments on the 2028 Medicaid Home and Community-Based Services (HCBS) Quality Measures Set NPRM
- Interagency Autism Coordinating Committee (IACC) 2026-2028 Strategic Plan
Program Integrity:
- The Real Costs of Fraud: Examining Program Integrity Requirements and Exposing Fraud in Medicare and Medicaid
- CMS’ Deputy Administrator and Chief Operating Officer Kim Brandt Testimony to the Oversight and Investigations Subcommittee of the House Energy & Commerce Committee: O&I Subcommittee: Protecting Patients and Safeguarding Taxpayer Dollars: The Role of CMS in Combating Medicare and Medicaid Fraud
- NASDDDS and ADvancing States Joint Association Medicaid PI Letters Summary (updated 05/26)
- NASDDDS and ADvancing States Joint HCBS PI State Self-Assessment
- CMS Actions: Medicaid Payment Deferrals in California and Minnesota
- Provider Revalidation Slides: Joint Association Call
- Provider Revalidation: State Medicaid Director Letter
- Provider Revalidation: Example of Governor Letter
State
California
- Letter from the Centers for Medicare & Medicaid Services (CMS)
- Letter from the House Committee on Energy and Commerce
Colorado
Florida
Massachusetts
Maine
- Letter from the Centers for Medicare & Medicaid Services (CMS)
- Letter from the House Committee on Energy and Commerce
Nebraska
New York
- Letter from the Centers for Medicare & Medicaid Services (CMS)
- Letter from the House Committee on Energy and Commerce
Oregon
Pennsylvania
Vermont
Washington
H.R. 1:
- Summary Slides Joint Presentation of One Big Beautiful Bill Act
- Community Engagement Requirements: Center for Health Care Strategies (CHCS) Brief on Federal Medicaid Work Requirements
- Community Engagement Requirements: NAMD Ex Parte Verification Issue Brief
- Community Engagement Requirements: CMS Slide Deck on Medical Frailty Exclusion
- Community Engagement Requirements: NASDDDS’ Initial Summary & Analysis
- Community Engagement Requirements: Taylor et al. v. Kennedy, Jr. et al (lawsuit challenging IFR)
- State-Directed Payments: Notice of Proposed Rulemaking (NPRM)
- Medicaid Eligibility for Noncitizens: CMS State Implementation Tool for Changes
- Medicaid Eligibility for Noncitizens: CMS July 14 Bulletin on Immigration Status and Medicaid Eligibility
- Provider Taxes: CMS Proposed Rule
Access Rule:
- HCBS Grievance Enforcement Discretion CIB CLEAN 2-25-26
- Exercise of Enforcement Discretion Until Calendar Year 2029 for Medicaid Interested Parties Advisor…
Other CMS Communications:
- State Medicaid Director Letter on 1115 Demonstrations
- Rescission of Guidance on HRSN
- Updated Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) Guide for States from Centers for Medicare & Medicaid Services (CMS)
- Centers for Medicare & Medicaid Services (CMS) Applied Behavior Analysis (ABA) Toolkit
Congressional Activity:
- ‘Dear Colleague’ Letter on LTSS Reform from Senate Finance Democrats
- June 2026 Report to Congress on Medicaid and CHIP
Legislation